Alstrom Syndrome causes childhood blindness, hearing loss, heart failure, kidney failure, diabetes type two, obesity and many related health problems. Alstrom Syndrome UK (ASUK) is a small family run charity providing support and advice to families living with Alstrom Syndrome. We provide newsletters an annual family conference and quarterly clinic support.
The British Council for the Prevention of Blindness prevents blindness worldwide by funding research into the causes of blindness and more effective treatments. The charity also specialises in training for medical professionals from developing countries who learn how to set up programmes which save the sight of many thousands of people.
British Scoliosis Research Foundation is the only charity that exists solely to promote research into the treatment of spinal deformities. The BSRF works closely with the Scoliosis Association UK and the British Scoliosis Society. It funds research into scoliosis and holds an international symposium to spread the knowledge gained from research.
The Children's Mitochondrial Disease Network is the only UK charity dedicated to providing information & support for all mitochondrial disorders, to families, carers and professionals.
The Trust raises funds in memory of Ciaran, who suffered from a genetic skin disorder called Keratitis-Ichthyosis-Deafness Syndrome (“KID syndrome”). The Trust aims to help people with similar conditions, as well as supporting research and promoting awareness about the difficulties of living with the multiple disabilities of blindness, deafness and skin disorders.
Established by Clarke’s parents in 1996 when 10-year old Clarke Lister died suddenly of a brain haemorrhage. We promote and assist research into causes and treatment of brain haemorrhage and share the useful results for public benefit, as well as providing support services for families affected by brain haemorrhage
funds research into stammering,particularly research with practical outcomes.supports training of practitioners to enable sharing of good practice.
Two babies are born every day with Down's syndrome. Through information and support for people with Down's syndrome, their families and professionals, the Down's Syndrome Association helps these people live full and rewarding lives.
The DMD Trust raises funds for research into cures for Duchenne & Becker Muscular Dystrophy. Duchenne is the UK's second most common inherited life-threatening disease.
Free children’s clinics for the diagnosis and treatment of reading difficulties. Provides accurate and unbiased information on latest research to educational/health professionals, media and general public in UK and internationally. Supports academic researchers – developing the skills and knowledge needed to continue scientific advance in the study of dyslexia.
Based in Plymouth, the study aims to unravel the factors that lead to diabetes and its complications. The seeds of diabetes are sown in childhood, and the charity's mission - Stop diabetes in childhood - declares the need to act early if the epidemic of diabetes is to be prevented.
The GM Trust was established when Gavriel, a 5 year old boy was diagnosed with Duchenne Muscular Dystrophy. DMD is a degenerative and as yet, incurable muscle wasting disease. which boasts a tragic 100% fatality rate. The objective of the trust is to promote research into the treatment, cure, care and welfare of those people suffering from DMD. Funding is urgently required in order to increase the speed and quantity of research currently being undertaken.
The GBS Support Group supports those suffering from dysimmune neuropathies including Guillain-Barré syndrome and CIDP. It provides information and support to sufferers and their families and aims to raise awareness of the illnesses amongst medical professionals and the general public. It raises funds for cutting-edge research into the illnesses.
Headfirst exists to raise funds to support research into acute conditions of the nervous system which result in mental and physical disability. These could be due to a stroke, brain tumour, sudden brain haemorrage or to a serious head injury.
ICOD Ltd is a user-led organisation of disabled people, providing a range of services including information and advice, awareness training, access auditing and running Inverclyde Shopmobility. We also campaign locally and nationally on issues affecting disabled people.
It helps anyone affected by Multiple sclerosis by providing financial aid and social activities
The ME Association is a campaigning national charity which provides information and support to 240.000 people in the UK with ME/Chronic Fatigue Syndrome, their families and carers, through a quarterly magazine, literature, education and training. It also funds biomedical research and runs ME Connect, the UK's premier helpline for people with ME/CFS.
Moebius Syndrome is a rare congenital disorder which to date, has no cure. It affects primarily the 6th & 7th cranial nerves, which means that those with the condition are unable to move their faces (can't smile, frown, suck, grimace or blink eyes). We aim to raise £250,000 to fund research into the cause of Moebius.
The Muir Maxwell Trust is the UK's only charity dedicated to pediatric epilepsy. The Trust’s remit is to provide practical support to children and their families coping with severe epilepsy and to increase awareness and understanding of epilepsy and help remove the stigma associated with the condition.
The Multiple Sclerosis Resource Centre (MSRC) is a national charity committed to supporting anyone affected by Multiple Sclerosis (MS). We provide a 24 hour, freephone Telephone Counselling Service that is available 365 days a year, and are publishers of the MS journal, New Pathways, we also run an advisory service with a MS specialist advisor. We provide access to unbiased information and advice and encourage individuals to make choices that will empower them to maximise their potential.
The Multiple Sclerosis Society is the UK's largest organisation dedicated to supporting the 85,000 people, their families and carers affected by MS.
Muscle disease is the gradual and relentless wasting and weakening of muscles. It can affect babies, children and adults. There is no cure. The Muscular Dystrophy Campaign is the leading UK charity dedicated to improving the lives of all people affected by muscle disease. We provide free care and support; fund world-class research to find treatments and cures; campaign to bring about change and award grants towards the cost of equipment such as wheelchairs.
also known as Yorkshire Eye Research, is a Branch of the National Eye Research Centre, which raises money to spend on eye research in Yorkshire. This research is not funded by the NHS. Please be generous.
The Neuropathy Trust is committed to a better future for all sufferers of peripheral neuropathy and neuropathic pain. Through education and communication to patients and healthcare professionals, the aim of the Trust is to raise awareness of these neuropathic disorders and provide a lifeline to all sufferers.
The Stem Cell Research Fund supports Newcastle University's groundbreaking research work into stem cell science. Over the past three years the University has attracted some of the world's leading researchers to push forward in the quest for breakthroughs in a variety of disease areas.
The charity's focus is to fund the implementation of research to find a cure for spinal chord injury. Funds are raised through the sale of "Off Duty - The World's Greatest Chefs Cook At Home" cookery book; individual, corporate and charitable donations. In addition Gala Dinners and other sponsorship activities are being organised for 2007.
The charity includes funds for Cossham, Frenchay, Southmead, and Thornbury Hospitals and for the BrAMS (Bristol & Avon Multiple Sclerosis) Appeal. Its purpose is to enhance the services for patients and to provide additional facilities for staff and for research, in addition to that which the Trust is normally able to provide.
The Nystagmus Network is a registered charity run by volunteers and one part-time employee. It relies on donations and members' subscriptions to enable us to provide support to people with the eye condition nystagmus and to promote research. It currently support several projects in the UK, covering ophthalmological research, genetics and possible drug therapies.
O.S.C.A.R raises funds to promote laboratory based research into new treatments for spinal cord injury. Its aim is to develop ways of using a patients own stem cells to help nerves re-grow and reverse the disabilities that result from their injury. See: http://www.keele.ac.uk/research/istm/johnson.htm
The Oxford Radcliffe Hospitals (ORH) Charitable Funds is the umbrella charity for over 700 funds supporting projects across the ORH NHS Trust that enhance services and facilities for patients and staff. These range from support for particular wards, at the John Radcliffe, Churchill and Horton Hospitals, to larger fundraising campaigns to support major developments such as the new Oxford Cancer Centre, the Oxford Children's Hospital, the Geratology Appeal and the Oxford Heart Centre expansion. As one of the foremost teaching trusts in the UK, the Oxford Radcliffe Hospitals enjoy a national and international reputation in fields such as cancer and cranio-facial surgery. Please give generously - your support enables us to provide the best possible healthcare in the best possible setting, to a standard far higher than the NHS alone would be able to afford.
The Parkinson's Appeal is a charity, which was set up by our founder Lyn Rothman to raise funds for a Deep Brain Stimulation Team headed up by the world-renowned Professor Marwan Hariz. It is through kind donations that we are able to continue our research to alleviate the soul destroying symptoms of Parkinson's disease and other neurological and movement disorders.
It provides riding and stable management sessions to people of all ages and disabilities. Everyone is taught to the best of their own individual ability. Riding is an excellent way of giving people with physical and mental disabilities a sense of independence and freedom. The horses movements stimulate the mind and muscle responses from disabled children.
It is the Foundation’s intention to raise money in order to help The Royal Marsden Hospital fulfil their plans to open a Rapid Diagnostic Centre for Melanoma Cancer. In addition to working with The Royal Marsden Hospital, the Foundation also supports Chai Cancer Care and The Peace Hospice.
Remedi provides funds for medical research projects in the UK which result in new rehabilitation procedures, improved medical equipment, services and facilities which dramatically improve the quality of life for babies, children and adults and make the journey from illness or disability back to a normal life a reality.
The Gift of Sight Appeal, established by Professor Andrew Lotery, funds world-class research into the prevention and treatment of blindness. Our principal areas of research are Age-related macular degeneration, the commonest cause of blindness in the Western world, Nystagmus and Glaucoma.
SIA is the national organisation of the UK's 40,000 spinal cord injured people. SIA provides a helpline, conducts research, campaigns and offers a peer support network, a link Scheme and a website. Promoting self-help through the sharing of experiences and advice, SIA believes that life needn't stop when you're paralysed.
Spinal Research is a pioneering charity. Its aim is to find ways to repair spinal cord injury and reverse the paralysis that results from it. Based in the UK and recognised as a leader in its field, Spinal Research funds groundbreaking projects at scientific and medical institutions around the world. The next landmark is the launch of clinical trials with paralysed volunteers. These trials will test innovative treatments that could repair damage in the human spinal cord, and so restore sensation and movement.
Spinal Research West Midlands Branch was set up in November 2006 by Colin Javens on his return from his Driving Home expedition and is jointly managed by Val Javens. The aim is to raise funds for International Spinal Research Trust (281325) and to help fund a cure for paralysis.
The Foundation`s main aim is to improve the quality of life through research. Research will be concerned with practicalities of living with spinal cord injury, but also with a committment to pushing back the scientific frontiers of spinal cord injury. One of the initial priorities is to establish a research institute adjacent to the National Spinal Injuries centre.
Thomas Pocklington Trust is the leading provider of housing, care and support services for people with sight loss in the UK. Each year Pocklington also commits around £700,000 to fund social and public health research and development projects.
Imagine losing the ability to move and feel for the rest of your natural life. That is the reality for millions of individuals world-wide who have become victims of a paralysing spinal cord injury. Walkoncemore funds cutting edge research into a cure for this horrific condition. With your help they can weld the key to unlock paralysis.
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Woodlands is a unique centre providing short term respite care, utilising an holistic approach, to anyone directly affected by Multiple Sclerosis. People stay at Woodlands for a week or two to enjoy a relaxing holiday, and to enable their carers to have a break. In addition, its Resource Centre provides information support and guidance to anyone affected by MS including health and social care professionals.
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